Pediatric Palliative Care Program

The Pediatric Palliative Care Program utilizes a team approach to offer comprehensive care for the child and family diagnosed with a complex long-term, potentially life-limiting illness. The team consists of specially trained nurses, social workers, and therapists, who in close collaboration with the physician will work with the child to maintain the highest quality of life and comfort. Parents are offered support as they are often confronted with difficult decisions regarding their child’s care. Emphasis is placed on incorporating the entire family into the child’s Plan of Care in an effort to strengthen bonds, provide support, and maintain open communication within the family unit.

Outcomes

Each child will receive a Plan of Treatment in collaboration with the pediatrician and specialists to address his/ her clinical concerns. All indicators will be monitored to assess outcomes.

  • Child (as appropriate) and caregiver’s ability to verbalize understanding of medical conditions, medications, and dietary restrictions.
  • Child’s compliance with home exercise plan with caregiver oversight.
  • Child and caregiver’s understanding and compliance with established medication regimen.

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